Families come together to find cure and raise money for research

9 months 2 weeks 5 days ago Saturday, September 30 2017 Sep 30, 2017 Saturday, September 30, 2017 11:38:00 AM CDT September 30, 2017 in News
By: Jasmyn Willis, KOMU 8 Reporter
loading
COLUMBIA - 150 mid-missourians took steps towards fighting muscular dystrophy by participating in the Muscular Dystrophy Associations Columbia muscle walk. There are other muscle walks through out the United States.
Director of Missouri MDA clinic, Doctor Raghav Gavindarajan said the walk has two purposes.
"The first purpose is to raise enough funds to do research for muscular dystrophy and other neuromuscular conditions that MDA takes care of," Gavindarajan said. We definitely need alot more research."
Gavindarajan said since there is no cure patients receive sympathy.
"They don't want our sympathy," Gavindarajan said. "They want our empathy. But they want to fight the disease. To fight the disease, we need research and this walk today helps with research to find a cure."
Senior Fundraising Coordinator Jon Durney said the walk serves as a yearly family reunion.
"The second purpose of this walk is to bring families together," Gavindarajan said. "We want the families to know that they have support out there. Sometimes when you have muscular dystrophy the patients, the families, and children feel very lonely. That's not good. We have a big family and support out there."
Durney said the walk raises money and awareness for the disease.
"The funds serves families in the counties that have raised it," Durney said. "Basically, it's giving back in the ways we serve them. So by our clinic here at Mizzou." 
MDA serves patients at two clinics: a pediatric and adult clinic, ALS clinic. It also provides patients with access to a loaner closet and helps send kids to camp.
"Our camp, the kids call it the best week out of the year," Durney said.
The walk has doubled in participants since last year and hopes to continue to grow next year.
"For a while the Columbia area was down on the MDA side," Durney said. "We needed to grow it and we've grown it. We made 7,000 last year and we are inches from making our goal of 16,000 this year and we're really excited about that."
Gavindarajan said he hopes one day a muscle walk won't be necessary.
"It's very, very essential that we find cures for muscular dystrophy, spinal dystrophy and other diseases that MDA treats," Gavindarajan said. "I wish one day we don't have to have MDA walks. I wish one day we find a cure so we don't have to worry about these things.
But that's not the case and we need to keep fighting. And I know you are all here to fight so thank you for being here today."
You can donate to the Columbia Muscle walk by visiting  MDA's website. 

More News

Grid
List
LAKE OF THE OZARKS - 64 years later, a different lake and nearly triple the death toll, the duck boat... More >>
9 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 9:12:00 PM CDT July 20, 2018 in News
(CNN) -- Russian intelligence operatives attempted to hack into the online accounts of staffers on three congressional campaigns in the... More >>
9 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 8:46:27 PM CDT July 20, 2018 in News
CHARLOTTE, N.C. (AP) — As Charlotte, North Carolina, celebrates being chosen Friday to host the 2020 Republican National Convention, an... More >>
10 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 8:05:32 PM CDT July 20, 2018 in News
(CNN) -- A cardiologist who treated former President George H.W. Bush was killed Friday morning in a bicycle-to-bicycle drive-by shooting... More >>
10 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 7:34:02 PM CDT July 20, 2018 in News
COLUMBIA - The Columbia Police Department will move into a new neighborhood over the next few weeks. In July,... More >>
11 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 6:41:00 PM CDT July 20, 2018 in News
CALLAWAY COUNTY - A Steedman man was sentenced to 12 years in prison after pleading guilty to charges of domestic... More >>
13 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 5:22:00 PM CDT July 20, 2018 in News
ST. JOSEPH (AP) — A Missouri man has pleaded guilty in the fatal beating of his 77-year-old grandmother while he... More >>
14 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 3:59:00 PM CDT July 20, 2018 in News
(CNN) -- The FBI is in possession of a recording between President Donald Trump and his former personal attorney Michael... More >>
14 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 3:38:16 PM CDT July 20, 2018 in Continuous News
JEFFERSON CITY – House Minority Leader Gail McCann Beatty will resign from the Missouri House of Representatives effective Sunday in... More >>
17 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 12:57:00 PM CDT July 20, 2018 in Top Stories
COLE COUNTY — The Cole County Sheriff’s Department responded to possible weapons violation on Thursday night. When the officers... More >>
18 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 11:47:00 AM CDT July 20, 2018 in Top Stories
(AP) - President Donald Trump has indicated that he's willing to hit every product imported from China with tariffs and... More >>
21 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 8:52:00 AM CDT July 20, 2018 in News
BRANSON - A press conference was held Friday morning following Thursday's fatal boat capsizing at Table Rock Lake. As... More >>
22 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 7:23:00 AM CDT July 20, 2018 in News
BRANSON (AP) — About 300 people gathered in a parking lot outside a tourism business to remember the 17 people... More >>
23 hours ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 7:16:00 AM CDT July 20, 2018 in News
BRANSON - The recent boat incident that killed 11 and injured seven in Branson isn't the first time Ride the... More >>
1 day ago Friday, July 20 2018 Jul 20, 2018 Friday, July 20, 2018 2:06:00 AM CDT July 20, 2018 in News
COLUMBIA - Thursday evening around 9:00 pm, two cars collided head-on at the intersection of Worley St. and W. Boulevard.... More >>
1 day ago Thursday, July 19 2018 Jul 19, 2018 Thursday, July 19, 2018 11:14:00 PM CDT July 19, 2018 in News
KANSAS CITY (AP) — A southern Missouri sheriff and a subordinate with whom he was having a romantic relationship have... More >>
1 day ago Thursday, July 19 2018 Jul 19, 2018 Thursday, July 19, 2018 10:46:00 PM CDT July 19, 2018 in News
COLUMBIA - The City of Columbia confirmed Friday the household hazardous waste collection is cancelled. The waste collection was... More >>
1 day ago Thursday, July 19 2018 Jul 19, 2018 Thursday, July 19, 2018 10:16:00 PM CDT July 19, 2018 in News
(CNN) -- More illnesses have been reported across the United States in two separate cyclospora outbreaks, federal health officials said... More >>
1 day ago Thursday, July 19 2018 Jul 19, 2018 Thursday, July 19, 2018 9:31:35 PM CDT July 19, 2018 in News
Columbia, MO
Broken Clouds 68°
7am 68°
8am 71°
9am 76°
10am 79°