Families come together to find cure and raise money for research

2 months 1 week 3 days ago Saturday, September 30 2017 Sep 30, 2017 Saturday, September 30, 2017 11:38:00 AM CDT September 30, 2017 in News
By: Jasmyn Willis, KOMU 8 Reporter
loading
COLUMBIA - 150 mid-missourians took steps towards fighting muscular dystrophy by participating in the Muscular Dystrophy Associations Columbia muscle walk. There are other muscle walks through out the United States.
Director of Missouri MDA clinic, Doctor Raghav Gavindarajan said the walk has two purposes.
"The first purpose is to raise enough funds to do research for muscular dystrophy and other neuromuscular conditions that MDA takes care of," Gavindarajan said. We definitely need alot more research."
Gavindarajan said since there is no cure patients receive sympathy.
"They don't want our sympathy," Gavindarajan said. "They want our empathy. But they want to fight the disease. To fight the disease, we need research and this walk today helps with research to find a cure."
Senior Fundraising Coordinator Jon Durney said the walk serves as a yearly family reunion.
"The second purpose of this walk is to bring families together," Gavindarajan said. "We want the families to know that they have support out there. Sometimes when you have muscular dystrophy the patients, the families, and children feel very lonely. That's not good. We have a big family and support out there."
Durney said the walk raises money and awareness for the disease.
"The funds serves families in the counties that have raised it," Durney said. "Basically, it's giving back in the ways we serve them. So by our clinic here at Mizzou." 
MDA serves patients at two clinics: a pediatric and adult clinic, ALS clinic. It also provides patients with access to a loaner closet and helps send kids to camp.
"Our camp, the kids call it the best week out of the year," Durney said.
The walk has doubled in participants since last year and hopes to continue to grow next year.
"For a while the Columbia area was down on the MDA side," Durney said. "We needed to grow it and we've grown it. We made 7,000 last year and we are inches from making our goal of 16,000 this year and we're really excited about that."
Gavindarajan said he hopes one day a muscle walk won't be necessary.
"It's very, very essential that we find cures for muscular dystrophy, spinal dystrophy and other diseases that MDA treats," Gavindarajan said. "I wish one day we don't have to have MDA walks. I wish one day we find a cure so we don't have to worry about these things.
But that's not the case and we need to keep fighting. And I know you are all here to fight so thank you for being here today."
You can donate to the Columbia Muscle walk by visiting  MDA's website. 

More News

Grid
List
COLUMBIA - Nearly four years ago to the day, local business owner Linda Bonebrake was diagnosed with severe sepsis at... More >>
3 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 6:47:00 PM CST December 10, 2017 in Continuous News
JEFFERSON CITY - Bird lovers got an up close look at birds typically seen in their backyards Sunday. It... More >>
4 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 5:36:00 PM CST December 10, 2017 in News
COLUMBIA - Museums around Columbia hosted docent led tours Sunday, spreading awareness about their exhibits and art collections. Docents are... More >>
6 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 3:59:00 PM CST December 10, 2017 in Continuous News
COLUMBIA - 2017 will mark the 140th Christmas the historic Maplewood House has seen from its home in south Columbia.... More >>
6 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 3:54:00 PM CST December 10, 2017 in News
COLUMBIA - MU Police Department, MU Greek Life, local businesses and residents made Operation Steal Back Christmas a huge success.... More >>
6 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 3:31:00 PM CST December 10, 2017 in News
SPRINGFIELD, Mo. (AP) — After more than 20 years of providing resources and activities for home schooling, a southwest Missouri... More >>
10 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 11:38:00 AM CST December 10, 2017 in News
COLUMBIA, Mo. (AP) — Jordan Geist, a role player known most for his scrappy style, scored 28 points Saturday night... More >>
12 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 9:39:00 AM CST December 10, 2017 in News
COLUMBIA- Alyssa Schell joined the University of Missouri Police Department as a dispatcher in February, excited to be living out... More >>
12 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 9:28:00 AM CST December 10, 2017 in News
CENTRALIA - A husband, wife and visiting grandchildren escaped a Saturday night house fire in Centralia, fire officials said. ... More >>
20 hours ago Sunday, December 10 2017 Dec 10, 2017 Sunday, December 10, 2017 1:36:00 AM CST December 10, 2017 in News
KANSAS CITY (AP) — Police in Kansas City, Missouri, say an 8-year-old boy has died after being hit by a... More >>
22 hours ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 11:35:21 PM CST December 09, 2017 in News
COLUMBIA - Students, staff and community members volunteered at University Village this morning to create a community garden, with the... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 9:41:00 PM CST December 09, 2017 in News
COLUMBIA - Columbia provides plenty of Christmas experiences for families to enjoy, but Columbia Access Television (CAT) offered a unique... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 3:38:00 PM CST December 09, 2017 in News
JEFFERSON CITY - When Hurricane Harvey struck Texas, the Patrick family watched news reports about the damage from their home... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 3:25:00 PM CST December 09, 2017 in News
COLUMBIA - With two years added to his contract, Mizzou football head coach Barry Odom will remain with the Tigers... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 3:15:00 PM CST December 09, 2017 in News
SPRINGFIELD (AP) — The first-degree murder trial of a 28-year-old Wisconsin man charged in the stabbing death of his Missouri... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 3:06:46 PM CST December 09, 2017 in News
COLUMBIA- As winter approaches, cold temperatures are making their way back to Columbia, with lows this week consistently below freezing.... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 2:37:00 PM CST December 09, 2017 in News
COLUMBIA – Treats Unleashed hosted “Milk and Cookies” Saturday to benefit Everything Greyt, a greyhound rescue organization. Dogs and... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 2:28:00 PM CST December 09, 2017 in News
ST. LOUIS (AP) — Police officers in St. Louis have come under gunfire for the second time in three days.... More >>
1 day ago Saturday, December 09 2017 Dec 9, 2017 Saturday, December 09, 2017 2:04:54 PM CST December 09, 2017 in News
Columbia, MO
Broken Clouds 43°
11pm 37°
12am 35°
1am 34°
2am 31°

Select a station to view its upcoming schedule:

Coming Up Next

7:20p
Sunday Night Football
10:30p
KOMU 8 News @ 10
11:05p
Sports Extra with Chris Gervino
10:00p
Seinfeld
10:30p
Family Guy
11:00p
All the Wilderness

Tonight's Schedule

6:00p
Football Night in America
7:20p
Sunday Night Football
7:00p
Married to the Mob
9:00p
KOMU 8 News @ Nine on The CW
9:30p
Family Guy