MDA Gives Hope

1 decade 4 months 3 weeks ago Monday, July 23 2007 Jul 23, 2007 Monday, July 23, 2007 10:00:27 AM CDT July 23, 2007 in News
loading

But for many others, it holds hope. This year's Muscular Dystrophy Association telethon will finally be the year the proceeds provide a cure. More than 1 million Americans are affected by neuromuscular diseases. About 250,000 have some form of muscular dystrophy.

Ellie Stitzer is one of the amazing kids living life despite challenges.

"This is Kid. This is a really old horse. He's a very calm horse, he eats a lot," said Stitzer about a horse she has come to love at MDA camp.

"(She) Loves horses, loves any kind of animal. She wants to be a vet when she grows up," said Stitzer's mother, Dietlande Stitzer.

Ten year-old Stitzer has spinal muscular atrophy type 2. It was apparent when she was a baby and there isn't a cure yet. Over time, it's harder and harder for Stitzer's muscles to communciate with her spine. She had sugergy last year to help correct the curving of her spine.

"They had to put metal rods in my back to help straighten it," said Stitzer.

Despite all she has been through, Stitzer is a delight to talk to and spend time with.

"She's very laid back, very happy. She doesn't complain about anything, even with the surgery. Not one time did she complain and say why did I have to have this. She just said, I have to do this, lets do it and get it over with. She inspires me and her father and just lifts us up," said Dietlande.

Besides grooming Kid once a week this summer, Stitzer also volunteers in the MDA office.

"She just comes out here to give back, and really I don't know how much she is giving back because she's enjoying it so much. She loves every minute of being with the horse and hanging out with the girls at the MDA office and talking with them, she's really having a good time," said Dietlande.

And MDA camp is the highlight of her time out from school.

"At school, your friends don't usually have it and they can do a lot more than you can do, but at camp you can do the exact same thing that your friends can," said Stitzer.

"She gets to go and do things that I never dreamed she could do. The first year she went, she said she played soccer. They had bought this big soccer ball they could hit with their wheelchair. They got to ride the horse and swim and got to do things with kids. She felt so at ease there. It was so great to see her have such a good time," said Dietlande.

She continued to explain the trials faced "with having a child with a neural muscular disease, there's a long to-do list. Things to buy for them, medical expenses and unfortunately sending your kid to camp is kinda last on the list. MDA provides that experience that for a lot of kids, the experience just would not be there."

MDA sends more than 4,200 kids to summer camps each year at cost of $650 per camper. There's no charge to families. The 42nd Jerry Lewis MDA telethon will be Monday, September 3rd.

More News

Grid
List
BOONE COUNTY - Firefighters responded to a shed fire off of Highway 40 near Rocheport Saturday morning. Boone County... More >>
1 hour ago Saturday, December 16 2017 Dec 16, 2017 Saturday, December 16, 2017 10:04:00 AM CST December 16, 2017 in Continuous News
KANSAS CITY, Mo. (AP) — Officials with the University of Missouri-Kansas City say students will soon have access to state-of-the-art... More >>
2 hours ago Saturday, December 16 2017 Dec 16, 2017 Saturday, December 16, 2017 8:16:45 AM CST December 16, 2017 in Continuous News
COLUMBIA - Cat cafes have popped up across the world in cities including New York City, London and Tokyo, and... More >>
3 hours ago Saturday, December 16 2017 Dec 16, 2017 Saturday, December 16, 2017 7:36:00 AM CST December 16, 2017 in News
COLUMBIA - The Missouri State Highway Patrol has confirmed it has fired Trooper Anthony Piercy. KOMU 8 spoke to... More >>
14 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 8:42:00 PM CST December 15, 2017 in News
COLUMBIA - St. Louis officers arrested a suspect that was on the run in a duplex on Sears Court in... More >>
14 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 8:29:00 PM CST December 15, 2017 in News
COLUMBIA - The application for the top education position in the state, Missouri State Education Board Commissioner, opened Friday leaving... More >>
15 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 8:02:00 PM CST December 15, 2017 in News
BLUE SPRINGS (AP) — A commercial real estate records company based in suburban Kansas City has abruptly shut down, leaving... More >>
15 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 7:42:00 PM CST December 15, 2017 in Top Stories
COLUMBIA - The Columbia Fire Department say a house fire that killed a cat Friday afternoon started in the kitchen.... More >>
15 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 7:29:00 PM CST December 15, 2017 in News
COLUMBIA - For the past six years Ryan Shultz, the creator/owner of the Candy Cane Crib, has shared a well-lit... More >>
15 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 7:17:00 PM CST December 15, 2017 in News
COLUMBIA - The Centers for Disease Control and Prevention said around half of adults in the U.S. struggle with understanding... More >>
17 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 6:00:00 PM CST December 15, 2017 in Continuous News
OLATHE, Kan. (AP) — A Blue Springs, Missouri, man has pleaded guilty to kidnapping and raping a sheriff's deputy... More >>
18 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 4:51:08 PM CST December 15, 2017 in News
KANSAS CITY, Mo. (AP) — Ten people are facing federal indictment in a $5.4 million methamphetamine distribution conspiracy. ... More >>
19 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 4:07:15 PM CST December 15, 2017 in News
COLUMBIA - Several new businesses will open in Columbia at the start of the new year. Wheely's Cafe, a... More >>
19 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 3:49:00 PM CST December 15, 2017 in Continuous News
INDEPENDENCE - Police have now cancelled an endangered silver advisory for a 73-year-old woman with dementia who might have been... More >>
19 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 3:43:00 PM CST December 15, 2017 in News
JEFFERSON CITY – The Jefferson City Public School Boundaries Committee began discussions on boundary lines for the city’s new high... More >>
19 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 3:29:00 PM CST December 15, 2017 in News
HOLTS SUMMIT - Holts Summit's board of aldermen met Thursday night to discuss creating a city-owned shelter. Currently, the... More >>
20 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 3:07:00 PM CST December 15, 2017 in News
SEDALIA (AP) — The former administrator of an ambulance service in central Missouri has pleaded guilty to embezzling more... More >>
20 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 2:52:00 PM CST December 15, 2017 in News
COLUMBIA - Police said a 42-year-old woman went missing Friday morning and was considered at risk because of medical conditions.... More >>
21 hours ago Friday, December 15 2017 Dec 15, 2017 Friday, December 15, 2017 2:11:00 PM CST December 15, 2017 in News
Columbia, MO
Broken Clouds 53°
12pm 53°
1pm 56°
2pm 59°
3pm 60°

Select a station to view its upcoming schedule:

Coming Up Next

11:00a
Journey with Dylan Dreyer
11:30a
English Premier League Soccer
1:30p
2018 Winter Olympic Trials
11:00a
Campmeeting: Inspiration Ministries
12:00p
Made in Hollywood
12:30p
The King of Queens

Tonight's Schedule

7:00p
Will & Grace
7:30p
Superstore
8:00p
Dateline NBC
9:00p
Saturday Night Live
7:00p
Family Guy
7:30p
Family Guy
8:00p
Bob's Burgers
8:30p
Bob's Burgers
9:00p
KOMU 8 News @ Nine on The CW
9:30p
Seinfeld