Her doctor Lorranie Dodson said, "The baby measured correctly when we measured, heartbeat was normal, so really there wasn't anything to make us suspicious until we saw her ultrasound."

Rachelle knew then that something was different, "[Dodson] sat down with the ultrasound pictures and said I think this baby has a big problem."

The ultrasound showed significant structural defects that led doctors to believe Hailey had a chromosomal disorder.

Rachelle explains, "[Dodson] said the baby had several serious problems and then that right there, we didn’t register that because we couldn’t understand how she could have so many problems when she was moving around and just so active and so normal, but she went into more detail and talked to us about chromosomes and that she was pretty sure that Hailey had the extra 13th chromosome."

After further testing Hailey Marie Glavin was diagnosed with Trisomy 13 and also alobar holoprosencephaly (HPE).

Dodson said, "[Trisomy 13 is] one of those things that’s usually a luck of the draw type of thing it happens at the time when the sperm is fertilizing the egg, and they’re sharing the genetic material and as that genetic material is shared the baby gets a little bit too much of that 13th chromosome."

Rachelle called her husband of four years, Tim, into the doctor's office so they could both hear Dodson's explanation, "Tim was, I think, pretty in shock and just asked, 'So what can we do? What can we do? When she's born what can we do for her?' And I just stopped and said there’s nothing we can do, just she won't make it. And I knew just by everything that [Dodson] said that was stacked up against her. [Dodson] agreed that if she was able to survive to term and through the birth, that she would only have moments to live because she had- she had the most severe of everything."

"Most babies born with Trisomy 13 don't live very long if they make it after birth at all, and a lot of babies are stillborn in utero," Dodson said.

Rachelle said, "I found that what she had- there's no cure, there's nothing. It wasn't because of us. It's just one of those rare random things that can happen that you just are never aware of."

The Glavin family was presented with the option to interrupt the pregnancy early.

Rachelle said, "You just feel, I mean what you are feeling right then and there you don't think that it's ever going to go away and you just think, how can I go on pretending everything's okay with [two-year-old son]Ryan? How can I see all these other pregnant women and know that they are having healthy babies? I mean, you just don't think you can make it though another day. You just want all of it to go away. You just don't want to feel that hurt anymore."

After much research, thought and consideration, Tim and Rachelle decided to continue with the pregnancy.

"After that moment I knew that the whole pregnancy would be different," Rachelle said. "I'm having to pick out one outfit for her. It's going to be her first and last, and that's extremely difficult. You know I'm not going to get baby showers instead I'm getting sympathy cards and flowers and just planning a whole funeral for her, which seems so awkward since she's still alive and still well, and yet I'm having to visit funeral homes and florists and getting a memorial slideshow together for her and just all of those things that you just shouldn't have to think about when you're pregnant and that’s hard."

Tim is simply hoping he will be able to hold little Hailey, "[I’m] Just praying that everything goes well and hopefully, maybe, I'll get to see her when she comes out and at least be with her for a few minutes."

Rachelle explains that Hailey is, "so active and that gives me hopes all in itself. It's just, oh, everytime she kicks I do not have a bad day. If I feel her kick I’m just on cloud nine because that’s another day I have with her."

Rachelle said neither she nor Tim take life for granted anymore. "I wish she wasn't sick. I wish she had a healthy normal chance at life, but this is the way God made her and I'm grateful for that and I'm going to cherish every moment I have with her."

Rachelle said they are still deciding how to explain Hailey’s condition to their two-year-old son, Ryan, "It's going to be difficult when we have to explain to him in the hospital why we aren't going to be bringing her home with us like we had planned."

Rachelle is fully prepared for when she goes into labor, "But letting her go, handing her over to someone and to know I won't see her again? That's the hardest part. I'm still trying to figure out how I'm going to do that, I'm going to be saying hello and goodbye in the same breath."

Rachelle and Tim have prepared their family in many different ways as well. They have worked with photographer Amy Knollmeyer from the Now I Lay Me Down To Sleep foundation. Knollmeyer will come to the hospital on the day of Hailey’s birth and take photos of the family together. Rachelle and Tim are also bringing hand and foot moldings, and a birthday cake for Hailey so her big brother Ryan can help her blow out the candles.

The Galvin family's message is one all about hope, about sharing Hailey’s Hope.

Rachelle says, "The one thing I told them was that you leave that room with nothing, I want to give parents something to take with them. Some kind of hope and some kind of support to let them know that they are not alone."

Rachelle is currently working through the March of Dimes foundation to put together a support group for parents here in mid-Missouri. Log onto the Glavin family’s blog, www.haileyshope.blogspot.com to get in contact with Rachelle or Tim about helping start that support group.

Rachelle and Tim say their faith has truly helped them through this experience, and one Bible verse in particular, Jeremiah 29:11,  "For I know the plans I have for you declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future."