Down syndrome support is the goal for one Columbia mother

2 years 4 weeks 2 days ago Friday, June 08 2018 Jun 8, 2018 Friday, June 08, 2018 2:55:00 AM CDT June 08, 2018 in News
By: Kamaria Braye, KOMU 8 News
loading

COLUMBIA - Having a child with Down syndrome is motivating one mother to help connect and provide resources to other families.

Eleven-year-old Julianna Basi is a friendly, smiling fifth grader, who likes to share fun facts about herself.

“I’m good at singing, and I’m also good at horseback riding,” she said.

Her mother, Kate Basi said Julianna is a happy child.

“She’s like this almost all the time. We have very few discipline problems with her. She doesn't take offense the way that other people do,” Basi said.

She and two other mothers in Columbia founded the Down Syndrome Guild of Greater Kansas City.

The organization's purpose is to provide resources to people with Down syndrome, their family and their supporters.

Basi said she had a difficult time meeting other parents who had children with Down syndrome when Julianna was younger.

“We didn’t have a way to connect to those families because privacy regulations both in schools and the medical community are really tight and so we had a really hard time finding other families.”

Basi said someone she knew who worked for a school district eventually helped. They talked to other families who gave their permission to share their information with Basi.

“Once she had those permissions, then we were able to get off the ground, and we just started socializing. Then we did one big kick-off event where we tried to get the word out through the media and we got a really good turn out that way, and so we’ve sort of grown from there,” Basi said.

The Down Syndrome Guild of Kansas City says it is the largest non-profit organization dedicated to people with Down syndrome.

The guild is planning a town hall Saturday to discuss expanding its services to Columbia.

“Myself and the other moms have been really focused in on trying to just create a network of families that can socialize and draw on each other’s expertise,” Basi said.

She said the group is specifically looking to reach older children, middle school, high school, newly graduated, young adults and adults.

“These are things that we're going to talk about this weekend in the town hall meeting. We're gonna find out what the need is in the community, not just what we think, but what people in the community think, ”Basi said.

She said she wants people to know some of the negative assumptions about those with disabilities are untrue.

Like other children, Julianna is excited about what she gets to do in the afternoon.

“When we go home from school I do my singing game, and my game has Disney songs," she said. "It has Aladdin and The Lion King!”

Basi said many people have the wrong idea about people with Down syndrome.

"There’s a misconception out there that is: life will be less rich because you have a disability and in fact, the opposite has been true,” she said.

Basi said many parents who have a child with a disability feel their life is exactly how it should be.

"Almost all of them would say that they never realized how precious and beautiful and rich life was until they had a child who didn't fit the mold that everybody else does,” she said.

The Down Syndrome Guild of Greater Kansas City says that one in every 800 people are living with Down syndrome and over 250,000 of those people live in the United States.

The Town Hall is Saturday at the Children's Therapy Center from 9 to 10:30 am.

Childcare and a light breakfast will be provided.

More News

Grid
List
COLUMBIA -- Monday Governor Mike Parson signed HB 2046. Inside the omnibus bill was coroner training reform Jay Minor's... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 7:13:00 PM CDT July 06, 2020 in News
JEFFERSON CITY —Gov. Mike Parson will sign an omnibus bill that increases prison sentences and eliminates probation for certain violent... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 6:14:00 PM CDT July 06, 2020 in News
COLUMBIA — Columbia police have arrested a 16 year old boy in connection to a shooting that resulted in a... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 6:09:00 PM CDT July 06, 2020 in News
COLUMBIA — A University of Maryland administrator and head of fundraising will be MU's next vice chancellor for advancement,... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 5:25:36 PM CDT July 06, 2020 in News
COLUMBIA —The Columbia/Boone County Health Department trained 15 city employees in contact tracing Monday. But the county is still at... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 4:50:00 PM CDT July 06, 2020 in News
JEFFERSON CITY - A free community COVID-19 testing event will be held July 7-9 in Cole County at the former... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 4:39:00 PM CDT July 06, 2020 in News
KANSAS CITY- Patrick Mahomes has signed a 10-year contract extension with the Kansas City Chiefs. This new contract will keep... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 4:11:00 PM CDT July 06, 2020 in News
BELLE —Police charged two suspects with assault Monday after a man was found with serious injuries. Police arrested 21... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 3:03:00 PM CDT July 06, 2020 in News
As COVID-19 continues to spread, KOMU 8 will continue to update you about impacts in the community. You can... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 2:34:00 PM CDT July 06, 2020 in News
COLUMBIA - Emotions over mask-wearing mandates are high. KOMU spoke to MU Health Care infectious disease doctor, Dr. Christelle Ilboudo,... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 2:00:00 PM CDT July 06, 2020 in News
COLUMBIA - Former Missouri basketball star Laurence Bowers kicked off his sixth annual basketball camp on Monday with the largest... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 12:59:00 PM CDT July 06, 2020 in Sports
COLUMBIA— Brian Weimer, major of operations with the MU Police Department, has been named interim chief of MUPD, according to... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 12:52:14 PM CDT July 06, 2020 in News
MISSOURI - The Missouri State Highway Patrol released its 2020 4th of July incident numbers in a news release Monday.... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 12:02:00 PM CDT July 06, 2020 in News
As COVID-19 continues to spread, KOMU 8 will continue to update you about impacts in the community. You can... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 11:02:00 AM CDT July 06, 2020 in News
(CNN) -- Around 30 years ago, a town in Oregon retrofitted an old van, staffed it with young medics and... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 10:49:19 AM CDT July 06, 2020 in News
COLUMBIA- The Columbia City Council is set to vote on a face mask order at their meeting Monday. The... More >>
1 day ago Monday, July 06 2020 Jul 6, 2020 Monday, July 06, 2020 6:21:00 AM CDT July 06, 2020 in News
COLUMBIA - Several community members talked about the need to hold each other along with leaders accountable following a double... More >>
2 days ago Sunday, July 05 2020 Jul 5, 2020 Sunday, July 05, 2020 7:31:00 PM CDT July 05, 2020 in News
As COVID-19 continues to spread, KOMU 8 will continue to update you about impacts in the community. You can... More >>
2 days ago Sunday, July 05 2020 Jul 5, 2020 Sunday, July 05, 2020 6:09:26 PM CDT July 05, 2020 in News
Columbia, MO
Broken Clouds 76°
1am 78°
2am 78°
3am 76°
4am 75°