Family seeks help to treat man's severe and rare skin condition

7 months 1 week 6 days ago Wednesday, April 04 2018 Apr 4, 2018 Wednesday, April 04, 2018 12:48:00 PM CDT April 04, 2018 in News
By: Ian Nickens, KOMU 8 Reporter
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CALIFORNIA – A California, Missouri, family is asking the community for help to pay for treatment for a man who has not one or two, but five types of psoriasis. One is incredibly rare and can be deadly.

Jordan Karpowecz, 23, has been diagnosed with plaque psoriasis, erythrodermic psoriasis, guttate psoriasis, inverse psoriasis and pustular psoriasis.

He's had to go to St. Louis several times for treatments, but his sister says the doctors there haven't found a successful treatment plan yet.

"Most of the time his skin is raw and peeling off and there's not much you can put on that," Karpowecz's sister, Haley Weathers, said. "Sometimes he has some creams he can put on, but even those haven't been real effective for him."

The Karpowecz family has scheduled an appointment with the Mayo Clinic in Minnesota for April 30. Weathers says they were lucky to get an appointment so soon.

However, getting an appointment is one thing. Paying for it is another. Weathers started a GoFundMe page in order to raise funds for the treatments Karpowecz would need. As of Wednesday, it is halfway to its initial goal of $1,000, and it's trending on the website. The family has since raised the goal to $5,000.

"The community support has been incredible," Weathers said. "The shares we've gotten on Facebook, the prayers we've gotten, we can definitely feel that they're working. Getting his appointment at the end of the month, obviously, is kind of a miracle in itself."

The money would also be used to pay for items like groceries, because Karpowecz's condition has put him out of work for the moment. It's keeping him from doing all sorts of other things, too.

"Swimming is his favorite thing to do, he loves to swim," Weathers said. "He loves to cook. He loves to be with his daughter, so he's unable to do any of that right now."

According to the National Psoriasis Foundation, plaque psoriasis is the most common form of psoriasis. It appears as raised, red patches covered with a silvery white buildup of dead skin cells or scale. The patches are very itchy and painful.

Guttate psoriasis is the second most common form of the disease. The bumps it forms aren't as big as the ones from plaque psoriasis.

Inverse psoriasis appears in the folds of the body, like the armpit or areas in elbows and knees. It has no scales, but becomes easily irritated due to moisture.

Pustular psoriasis creates blisters filled with pus on some areas of the body. Von Zumbusch pustular psoriasis is life-threatening and can appear with erythrodermic psoriasis.

Erythrodermic psoriasis is one of the rare types of psoriasis affecting Karpowecz. It can also be life-threatening. It occurs in only 3 percent of people with psoriasis. It can cause infections, pneumonia and congestive heart failure.

Experts don't actually know what causes this particular type, but it follows plaque psoriasis.

Different types of psoriasis affect different age groups, and they all have different symptons and treatments.

All of these types of psoriasis can occur simultaneously, as is seen with Karpowecz.

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