Family turns son's death into law banning secret 'do-not-resuscitate' orders

7 months 4 weeks 16 hours ago Wednesday, June 26 2019 Jun 26, 2019 Wednesday, June 26, 2019 9:54:00 PM CDT June 26, 2019 in News
By: Rosemond Crown, KOMU 8 Reporter
loading

ST. LOUIS — Sheryl Crosier  and her husband Scott said they watched helplessly as their son, Simon, took his last breath without any effort from hospital staff to resuscitate him.

It was only after Simon died that Crosier and her husband found out doctors in Missouri can legally place do-not-resuscitate (DNR) orders on child patients without permission from their parents.

Now the parents have succeeded in passing Simon's law to make it illegal.

Simon was diagnosed with Trisomy 18, a life-threatening developmental disorder, before he was born in 2010. His parents said he spent all three months of his life at the St. John’s Mercy Medical Center, now Mercy Hospital St. Louis.

They said during the entirety of his stay, his medical team changed his treatment plan and put him on a low amount of food, all without consulting them.

The Crosiers said their struggles culminated to December 3 when Simon died.

“His oxygen level was falling, and we were told this is the end and nothing could be done. And we were just watching our child die,” Crosier said. “The only people that were panicking in his NICU room were (my husband) and myself.”

Since then, the Crosiers said they have been working to make sure the same thing does not happen to other parents.

Their bill, called Simon’s Law, was filed by Rep. Bill Kidd, R-Jackson. This May, it was passed by a unanimous vote - making Missouri the fourth state to do so.

Now it awaits the governor's signature.

“After I heard her story, I told her, ‘If I am elected, I will fight the fight for Simon,’” Kidd said.

The bill will require hospitals to make reasonable attempts to gain consent from a child's parent or legal guardian before placing a DNR in his/her medical chart.

Earlier versions of the bill required parents or guardians to sign the child's DNR. After some argued it is similar to signing a child's death warrant, that section was modified. Now two witnesses must be present when the parents and physician discuss end of life options.

Kidd said the bill would protect both parents and medical professionals.

“This is a parental rights bill,” said Kidd. “But we’ve put things in there to also protect the doctors and hospitals to say, ‘Doctor, you don’t have to do CPR forever and ever. You can stop.’”

Kidd said in crafting the bill, he worked with the state’s hospital association to ensure that both parties are satisfied and feel protected.

Dave Dillon, vice president for media relations at the Missouri Hospital Association, said in the past that the association had concerns that the bill would limit health care professionals’ medical judgment.

“Do you tell medical staff to perform CPR on an individual that is otherwise dead until you get the parent’s approval?” Dillon asked.

He now says the association supports the bill.

"It's good for our hospital staff too," Dillon said. "Because when you know the rules, you are more likely to follow them."

Crosier said passing Simon's Law is about empowering parents.

“Nobody should make these decisions except for a parent,” Crosier said. “That’s why people need to know about these secret DNRs.”

The governor's office does not yet have a signing date set for Simon's Law.

More News

Grid
List
AP — State attorneys general are finding a national settlement over the toll of opioids to be elusive, as some... More >>
3 hours ago Sunday, February 23 2020 Feb 23, 2020 Sunday, February 23, 2020 11:17:32 AM CST February 23, 2020 in News
SEDALIA — A 49-year-old man was taken to the University of Missouri hospital via air ambulance after sustaining a gunshot... More >>
5 hours ago Sunday, February 23 2020 Feb 23, 2020 Sunday, February 23, 2020 9:25:40 AM CST February 23, 2020 in News
FULTON - Police arrested a 44 year old Fulton man after he attempted to unlawfully enter a home twice, assaulted... More >>
8 hours ago Sunday, February 23 2020 Feb 23, 2020 Sunday, February 23, 2020 6:10:00 AM CST February 23, 2020 in News
SEDALIA- Police officers in Sedalia responded to a report of a man lying in the roadway near the 700 block... More >>
16 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 11:01:00 PM CST February 22, 2020 in News
COLUMBIA - Dozens of MU students gathered to raise money for cancer research Saturday. Mizzou's Relay for Life raised... More >>
20 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 6:41:00 PM CST February 22, 2020 in News
JEFFERSON CITY — Police arrested three people after a Saturday afternoon robbery led to a car chase, according to a... More >>
21 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 5:46:00 PM CST February 22, 2020 in News
JEFFERSON CITY — Missouri voters legalized medical marijuana in 2018, but some lawmakers are worried about what that could... More >>
22 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:53:00 PM CST February 22, 2020 in News
COLUMBIA, MO - The Missouri Tigers hosted the Missouri Collegiate Challenge in track and field on Saturday. The Tigers finished... More >>
22 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:36:00 PM CST February 22, 2020 in Sports
ST. LOUIS (AP) — Missouri may have shed its unwanted image as the meth lab capital of the U.S.,... More >>
22 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:21:00 PM CST February 22, 2020 in News
COLUMBIA - Columbia is getting a break from winter weather this weekend and many residents are taking advantage of it.... More >>
22 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:21:00 PM CST February 22, 2020 in News
REEDS SPRING, Mo. – Students in the Reeds Spring School District will begin a four-day school week next school... More >>
22 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:11:55 PM CST February 22, 2020 in A Brighter Tomorrow
COLUMBIA – Several First Ward neighborhood associations hosted a town hall forum Saturday with city council candidates to discuss housing,... More >>
23 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 4:07:00 PM CST February 22, 2020 in News
Black LGBTQ youth are less likely to receive mental health... More >>
23 hours ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 3:51:00 PM CST February 22, 2020 in A Brighter Tomorrow
COLUMBIA — In an effort to contain the novel coronavirus, the Chinese government has canceled a number of exams this... More >>
1 day ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 2:56:57 PM CST February 22, 2020 in News
FAYETTEVILLE, AR - The Missouri Tigers fell to the Arkansas Razorbacks at Bud Walton Arena on Saturday, 78-68. The Tigers... More >>
1 day ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 2:25:05 PM CST February 22, 2020 in Sports
COLUMBIA— A Columbia chiropractic office hosted a seminar to educate and empower women Saturday afternoon. The event was part of... More >>
1 day ago Saturday, February 22 2020 Feb 22, 2020 Saturday, February 22, 2020 2:13:00 PM CST February 22, 2020 in News
MOBERLY - Moberly police officers responded to a domestic assault at 1028 Sinnock Ave., at 2:48 a.m. Friday, February 21,... More >>
1 day ago Friday, February 21 2020 Feb 21, 2020 Friday, February 21, 2020 10:45:00 PM CST February 21, 2020 in News
COLUMBIA - "Honest" and "righteous" are just a couple of words friends used to describe Columbia City Councilman Clyde Ruffin.... More >>
1 day ago Friday, February 21 2020 Feb 21, 2020 Friday, February 21, 2020 5:55:00 PM CST February 21, 2020 in News
Columbia, MO
Broken Clouds 60°
3pm 57°
4pm 56°
5pm 54°
6pm 50°