"Fill-the-Boot" Campaign Kicks Off

9 years 1 month 1 week ago Thursday, August 11 2011 Aug 11, 2011 Thursday, August 11, 2011 7:22:00 PM CDT August 11, 2011 in News
By: Kylie McGivern
loading

COLUMBIA - Community leaders joined forces in Columbia Thursday morning to announce the start of this year's Fill-the-Boot campaign.

This is the 57th year firefighters and the Muscular Dystrophy Association have teamed up to strengthen awareness, in the hope of weakening a fatal disease.

Last year, Columbia residents helped firefighters, Joe Machens Dealerships, and KOMU raise more than $50,000 for MDA.

Columbia Mayor Bob McDavid said it's a fight to eliminate the very definition of muscular dystrophy.

"If you search muscular dystrophy on Wikipedia, you're going to find two sentences that we absolutely have to get rid of. The first sentence is - there is no known cause. The second sentence is - there is no known cure," McDavid said.

University of Missouri professor Chris Lorson is one researcher working to change that definition. He has spent 10 of his 13 years working with spinal muscular atrophy at MU.

"It's a truly devastating disease and it really changes the entire family dynamics. And, just being able to be involved and see how the families live with this disease, it just really puts a meaning behind what you do every day. It's not just clear, colorless liquids that you're working with, it's actually someone's life and well-being," Lorson said.

He has hope, seeing how the disease has progressed.

"When I first started working on this disease, people were told to go home and enjoy the time that they have with their kids. Now, that's not the case. The lifespans have been extended dramatically, and it really is a matter of watching the kids fight and make a difference. They really do have very meaningful lives - they change their families' lives.... it really is about watching families, watching them learn to deal with this and becoming better families because of it."

 

More News

Grid
List
(CNN) -- Pre-pandemic, many of us viewed flying simply as a method of getting from one destination to another as... More >>
1 day ago Friday, September 18 2020 Sep 18, 2020 Friday, September 18, 2020 6:46:00 AM CDT September 18, 2020 in News
Modified Boone County health order in effect starting today The order goes into effect 12 a.m. Sept. 18 and... More >>
1 day ago Friday, September 18 2020 Sep 18, 2020 Friday, September 18, 2020 4:45:00 AM CDT September 18, 2020 in News
COLUMBIA - For the November presidential election, registered voters in Missouri will have the choice to vote in person, absentee... More >>
1 day ago Friday, September 18 2020 Sep 18, 2020 Friday, September 18, 2020 4:44:00 AM CDT September 18, 2020 in News
BOONE COUNTY- Entertainment venues, bars and restaurants no longer have to stop serving alcohol at 9 p.m. and close at... More >>
1 day ago Friday, September 18 2020 Sep 18, 2020 Friday, September 18, 2020 3:51:00 AM CDT September 18, 2020 in News
COLUMBIA- Missouri candidates for governor will participate in a forum at 2 p.m. Friday, Sept. 25, sponsored by the Missouri... More >>
1 day ago Friday, September 18 2020 Sep 18, 2020 Friday, September 18, 2020 3:13:00 AM CDT September 18, 2020 in News
ST. LOUIS — The Internal Revenue Service released a state-by-state breakdown of people who will be receiving letters asking... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 7:46:26 PM CDT September 17, 2020 in News
COLUMBIA - A tutoring program called Grade A Plus, which offers free tutoring from MU students, is moving online this... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 7:08:00 PM CDT September 17, 2020 in News
CALLAWAY COUNTY – Overnight Interstate 70 travelers could experience lane closures next week as MoDOT crews work on their Callaway... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 5:33:00 PM CDT September 17, 2020 in News
COLUMBIA- As the Covid-19 pandemic continues, families are looking for ways to celebrate moments while still following social distancing guidelines.... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 5:10:00 PM CDT September 17, 2020 in News
COLUMBIA- A federal search warrant was executed Thursday on the 300 block of East Winter Street in north Boone County,... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 3:54:00 PM CDT September 17, 2020 in News
KINGSTON, Mo.. (AP) — The trial of a Missouri man accused of killing two brothers from Wisconsin is being moved... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 3:37:35 PM CDT September 17, 2020 in News
ST. LOUIS (AP) — A gathering at the Lake of the Ozarks is bringing tens of thousands of motorcycle enthusiasts... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 2:54:24 PM CDT September 17, 2020 in News
MISSOURI- The COVID-19 pandemic has caused most people to have little to no in-person social interactions due to quarantine and... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 2:53:00 PM CDT September 17, 2020 in News
COLUMBIA - Columbia College President Dr. Scott Dalrymple announced the campus will recognize Juneteenth as a paid holiday, starting next... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 2:46:00 PM CDT September 17, 2020 in News
JEFFERSON CITY - Despite the pandemic and widespread protests against police brutality, the Missouri State Highway Patrol has seen an... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 2:09:00 PM CDT September 17, 2020 in News
COLUMBIA - Some people are afraid to leave their homes during a global pandemic. This fear is even higher for... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 1:25:00 PM CDT September 17, 2020 in News
KANSAS CITY - Ten people were asked to quarantine after a potential COVID-19 exposure at the Kansas City Chiefs' season... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 1:10:01 PM CDT September 17, 2020 in News
O'FALLON (AP)- Poll workers signed up to work the November election in a county near St. Louis have been urged... More >>
1 day ago Thursday, September 17 2020 Sep 17, 2020 Thursday, September 17, 2020 1:10:00 PM CDT September 17, 2020 in News
Columbia, MO
Broken Clouds 50°
9am 55°
10am 59°
11am 63°
12pm 65°