Little-Known Disease Frustrates Patients

1 decade 2 years 9 months ago Tuesday, February 07 2006 Feb 7, 2006 Tuesday, February 07, 2006 6:30:29 PM CST February 07, 2006 in News

Karen Ferris has a disease called Ehlers-Danlos which affects her joints.

"I actually can turn, take my arm and almost turn it completely around, and I can take my thumb and go back like this," said Ferris. "I can take my fingers and go straight back like this."

When Ferris was young, she didn't think anything of it. Neither did her doctors.

She didn't know dislocating her joints would take a toll later.

"Pain is something I actually have to live with almost every day of my life," she added.

But Ferris didn't get her diagnosis until after her son was born.

"My son, actually, when he was small, when he got angry, about a year old, he would lift his leg up and dislocate his hip," she explained.

He was diagnosed with Ehlers-Danlos and that led to Karen's diagnosis. Her three-year-old daughter also has the disease.

Ferris has lost four inches in height and has had several surgeries, including a knee replacement.

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